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By Andrew Solomon
May 6, 2001
Depression crept up on Andrew Solomon. His life closed
in on him: he couldn't eat properly, shower, or talk to friends. Drugs
helped, his father helped - but, as his acclaimed new book reveals,
there was only one person who could make him feel safe from himself.
If my life had been more difficult, I would understand my depression
very differently. In fact, I had a reasonably happy childhood with two
parents who loved me generously, and a younger brother whom they also
loved and with whom I got on well. It was a family sufficiently intact
that I never even imagined a real battle between my parents, who loved
each other very much indeed; though they argued from time to time, they
never questioned their absolute devotion to each other and to my
brother and me. And then in August 1989, when I was 25, my mother was
diagnosed with ovarian cancer and my world began to crumble. If she had
not fallen ill, if that story had been a little bit less tragic, then
perhaps I would have gone through life with depressive tendencies but
no breakdown; or perhaps I would have had a breakdown later on as part
of a midlife crisis; or perhaps I would have had one just when and as I
did.
I will not detail how everything fell apart because to those who have
known wasting sickness this will be clear and to those who have not it
remains perhaps as inexplicable as it was to me when I was 25. Suffice
it to say that in 1991, my mother died. She was 58. I was paralytically
sad. Despite tears and sorrow, despite the disappearance of the person
I had depended on so constantly and for so long, I did OK in the period
after her death. I was sad and I was angry, but I was not crazy.
Depression dawns as gradually as adulthood.
It was not until June 1994 that I began to notice I was constantly
bored. My first novel had been published in England and yet its
favourable reception did little for me. I read the reviews
indifferently and felt tired all the time. I found myself burdened by
social events, even by conversation. It all seemed like more effort
than it was worth. I began to feel that no one could love me and that I
would never be in a relationship again. I had no sexual feelings at
all. I began eating irregularly because I seldom felt hungry. My
analyst said it was depression.
A loss of feeling, a numbness, infected all my human relations. I
didn't care about love, my work, family, friends. My writing slowed,
then stopped. 'I know nothing,' the painter Gerhard Richter once wrote.
'I can do nothing. I understand nothing. I know nothing. Nothing. And
all this misery does not even make me particularly unhappy.'
I was losing my self and that scared me. I made a point of scheduling
pleasures into my life. I went to parties and tried and failed to have
fun; I saw friends and tried and failed to connect; I bought expensive
things I'd wanted in the past and had no satisfaction from them. Your
senses slowly abandon you in depression. 'There's a sudden point when
you can feel the chemistry going,' Mark Weiss, a depressive friend,
once said to me. 'My breathing changes and my breath stinks. My piss
smells disgusting. My face comes apart in the mirror. I know when it's
there.'
For me, this point coincided with the publication of my first novel. A
good friend had volunteered to throw a book party for me on 11 October.
I love parties and I love books and I knew I should have been ecstatic,
but in fact I was too lacklustre to invite many people and too tired to
stand up much during the party. I remember that party only in ghostly
outlines and washed-out colours: grey food, beige people, muddy light
in the rooms. I do remember that I was sweating horribly during it, and
that I was dying to leave. No one seemed to notice anything strange. I
got through the evening.
When I got home, I began to feel frightened. I lay in bed, not
sleeping, hugging my pillow for comfort. Over the next two-and-a-half
weeks things got worse. Shortly before my thirty-first birthday, I went
to pieces. My whole system seemed to be caving in. I was not going out
with anyone at the time. My father had volunteered to organise a
birthday party for me, but I couldn't bear the idea and we agreed to go
to a favourite restaurant with four of my closest friends.
On the day before my birthday, I left the house only once, to buy some
groceries. On the way home, I suddenly lost control of my lower
intestine and soiled myself. I could feel the stain spreading as I
hastened home. When I got in, I dropped the grocery bag, rushed to the
bathroom, got undressed and went to bed. I did not sleep much that
night and I could not get up the following day. I knew I could not go
to any restaurant. I wanted to call my friends and cancel, but I
couldn't. I lay very still and thought about speaking, trying to figure
out how to do it. I moved my tongue but there were no sounds. I had
forgotten how to talk. Then I began to cry, but there were no tears,
only a heaving incoherence. I was on my back. I wanted to turn over,
but I couldn't remember how to do that either. I tried to think about
it, but the task seemed colossal. I thought that perhaps I'd had a
stroke and then I cried again for a while.
At about three that afternoon, I managed to go to the bathroom. I
returned to bed shivering. Fortunately, my father called. 'You have to
cancel tonight,' I said, my voice shaky. 'What's wrong?' he kept
asking, but I didn't know.
There is a moment, if you trip or slip, before your hand shoots out to
break your fall, when you feel the earth rushing up at you and you
cannot help yourself, a passing, fraction-of-a-second terror. I felt
that way hour after hour. Being anxious at this extreme level is
bizarre. You feel all the time that you want to do something, that
there's a physical need of impossible urgency and discomfort for which
there is no relief, as though you were constantly vomiting from your
stomach but had no mouth.
With the depression, your vision narrows and begins to close down. It
is like trying to watch TV through terrible static, where you can sort
of see the picture but not really; where you cannot ever see people's
faces, except almost if there is a close-up; where nothing has edges.
The air seems thick and resistant, as though it were full of mushed-up
bread. Becoming depressed is like going blind, the darkness at first
gradual, then encompassing; it is like going deaf, hearing less and
less until a terrible silence is all around you, until you cannot make
any sound of your own to penetrate the quiet.
My father came down to my apartment with a friend of mine, trailing my
brother and his fiancée. I had had nothing to eat in almost two
days, and they tried to get me to eat a little smoked salmon. Everyone
thought I must have some kind of virus. I ate a few bites, then threw
up all over myself. I couldn't stop crying. The next day, I managed,
somehow, to get to my analyst's office. 'I think I'm going to have to
start taking medication,' I said, diving deep for the words. 'I'm
sorry,' she said, and called the psychopharmacologist, who agreed to
see me in an hour.
The psychopharmacologist seemed to have come out of some movie about
shrinks. His office had fading mustard-coloured silk wallpaper and was
piled high with books with titles such as Addicted to Misery and
Suicidal Behaviour: the Search for Psychic Economy. He was in his
seventies, smoked cigars, had a Central European accent and wore carpet
slippers. He had elegant, prewar manners and a kindly smile.'Well,
well,' he said calmly as I trotted out my horrors. 'Very classic
symptoms indeed. Don't you worry, we'll soon have you well.'
He wrote out a prescription for Xanax, then burrowed around to find a
starter kit of Zoloft. He gave me detailed instructions on how to begin
taking it. 'You'll come back tomorrow,' he said with a smile. 'The
Zoloft will not work for some time. The Xanax will alleviate your
anxiety immediately. Do not worry about its addictive qualities and so
on, as these are not your problems at the moment. Once we have lifted
the anxiety somewhat, we will be able to see the depression more
clearly and take care of that.'
On my first day on medication, I moved into my father's apartment. My
father was almost 70 and most men of that age cannot easily tolerate
complete shifts in their lives. My father is to be praised not only for
his generous devotion, but also for the flexibility that allowed him to
understand how he could be my mainstay through rough times, and for the
courage that helped him to be that mainstay.
He picked me up at the doctor's and took me home with him. I had not
brought clean clothes with me, but I didn't really need them as I was
hardly to get out of bed for the next week. Panic was my only
sensation.
The days were like this: I would wake up, knowing I was experiencing
extreme panic. What I wanted was only to take enough panic medication
to allow me to go back to sleep, and then I wanted to sleep until I got
well. When I would wake up a few hours later, I wanted to take more
sleeping pills. Killing myself, like dressing myself, was much too
elaborate an agenda to enter my mind; I did not spend hours imagining
how I would do such a thing. All I wanted was for 'it' to stop. I could
not have managed even to be so specific as to say what 'it' was.
Depression, like love, trades in clichés, and it is difficult to
speak of it without lapsing into the rhetoric of saccharine pop tunes;
it is so vivid when it is experienced that the notion that others have
known anything similar seems altogether implausible.
Depression minutes are like dog years, based on some artificial notion
of time. I can remember lying frozen in bed, crying because I was too
frightened to take a shower, and at the same time knowing that showers
are not scary. I kept running through the individual steps in my mind:
you turn and put your feet on the floor; you stand; you walk from here
to the bathroom; you open the bathroom door; you walk to the edge of
the tub; you turn on the water; you step under the water; you rub
yourself with soap; you rinse; you step out; you dry yourself; you walk
back to the bed.
Twelve steps, which sounded then as onerous as the Stations of the
Cross. But I knew, logically, that showers were easy, that for years I
had taken a shower every day and that I had done it so quickly and so
matter of factly that it had not even warranted comment. I knew that
those 12 steps were really quite manageable.
So with all the force in my body I would sit up; I would turn and put
my feet on the floor; then I would feel so incapacitated and so
frightened that I would roll over and lie face down. All over the world
people were taking showers. Why, oh why, could I not be one of them?
And then I would reflect that those people also had families and jobs
and bank accounts and passports and dinner plans and problems, real
problems, cancer and hunger and the death of their children and
isolating loneliness and failure; and I had so few problems by
comparison, except that I couldn't turn over again, until a few hours
later, when my father or a friend would come in and help to hoist my
feet back up onto the bed.
I would lie in the safety of the bed and feel ridiculous. And sometimes
in some quiet part of me there was a little bit of laughter at that
ridiculousness, and my ability to see that, is, I think, what got me
through. Always at the back of my mind there was a voice, calm and
clear, that said: don't be so maudlin; don't do anything melodramatic.
Take off your clothes, put on your pyjamas, go to bed; in the morning,
get up, get dressed, and do whatever it is that you're supposed to do.
I heard that voice all the time, that voice like my mother's. There was
a sadness and a terrible loneliness as I contemplated what was lost.
'Did anyone - not just the red-hot cultural centre, but anyone, even my
dentist - care that I had withdrawn from the fray?' Daphne Merkin wrote
in a confessional essay on her own depression. 'Would people mourn me
if I never returned, never took up my place again?'
By the time evening came around, I was able to get out of bed. Most
depression is circadian, improving during the day and then descending
again by morning. At dinner, I would feel unable to eat, but I could
get up and sit in the dining-room with my father, who cancelled all
other plans to be with me. I could also speak by then. I tried to
explain what it was like. My father nodded, implacably assured me that
it would pass, and tried to make me eat. He cut up my food. I told him
not to feed me, that I wasn't five, but when I was defeated by the
difficulty of getting a piece of lamb chop on to my fork, he would do
it for me.
All the while, he would remember feeding me when I was a tiny child,
and he would make me promise, jesting, to cut up his lamb chops when he
was old and had lost his teeth. He had been in touch with some of my
friends, and some of my friends had called me anyway, and after dinner
I would feel well enough to call some of them back. Sometimes, one
would even come over after dinner. Against the odds, I could usually
even have a shower before bed! And no drink after crossing the desert
was ever lovelier than that triumph and the cleanliness. Before bed,
Xanaxed out but not yet asleep, I would joke with my father and with
friends about it, and that rare intimacy that surrounds illness would
make itself felt in the room, and sometimes I would feel too much and
begin to cry again, and then it was time to turn off the lights, so
that I could go back to sleep.
Sometimes, friends would sit with me until I drifted off. Some
evenings, my father read to me from the books he had read me when I was
a child.
In the meantime, I still had the reading tour to do. I had to go to
bookstores and other venues and stand up in front of groups of
strangers and read aloud from the novel I had written. It was a recipe
for disaster, but I was determined to get through it. Before the first
of these readings, in New York, I spent four hours taking a bath.Then I
went and read. I felt as though I had baby powder in my mouth and I
couldn't hear well, and I kept thinking I might faint, but I managed to
do it. Then a friend helped to get me home and I went back to bed for
three days.
My next engagements were out in California. I thought I could not go; I
knew that I could not go alone. In the end, my father took me there.
While I was in a Xanax haze, he got me on and off the plane, out of the
airport, to the hotel. I was so drugged up that I was almost asleep,
but in this state I could manage. I knew that the more I managed to do
the less I would want to die, so it seemed important to go.
Doing those readings was the most difficult endeavour of my life. My
father joined me for many of the trips; when we were apart, he called
me every few hours. A few close friends took on responsibility for me
and I was never alone. I can tell you that I was not a fun companion
and that deep love and the knowledge of deep love were not by
themselves the cure. I can also say that without deep love and the
knowledge of deep love, I would not have found it in myself to go
through with that tour. I would have found a place to lie down in the
woods and I would have stayed there until I froze and died.
The terror lifted in December. Whether that was because the drugs had
kicked in or the reading tour was over, I do not know. In the end, I
cancelled only one reading and managed to visit 11 cities. I made it
through Christmas and New Year and I was acting like some semblance of
myself. I had lost 15lbs and now I began to put on weight again. My
father and my friends all congratulated me on my astonishing progress.
I thanked them.
In my private self, however, I knew that what had gone away were only
symptoms. I hated taking my pills every day. I hated that I had had a
breakdown and lost my mind. I was relieved to have made it through the
tour, but I was overpowered being in the world, by other people and
their lives I couldn't lead, jobs I couldn't do. I was back to about
where I had been at the beginning of the depression, only now I
understood how bad it could get. I was determined never again to go
through such a thing.
I felt a little bit like my old self, but the year had been so awful,
had shaken me so deeply, that though I was now functioning again, I had
also realised that I could not go on.This did not feel irrational, like
the terror; it did not feel angry; it felt quite sensible. I had had
enough of life and I wanted to figure out how to end it with the least
possible damage to the people around me. I needed something to show, so
that everyone would understand how desperate I was. I had to give up
the invisible impediment for a manifest one.
There is little question in my mind that the particular behaviour I
chose was highly individual and related to neuroses of my own, but the
decision to behave with such a hunger to be rid of the self was typical
of agitated depression. All I had to do was to get sick and that would
give me permission. The wish for a more visible illness was, I would
later learn, a commonplace among depressives, who often engage in forms
of self-mutilation to bring the physical state in line with the mental.
I could not figure out how to give myself cancer or MS or various other
fatal diseases, but I knew just how to get Aids, so I decided to do
that. In a park in London, at a lonely hour well after midnight, a
short, tubby man with thick tortoiseshell glasses came up and offered
himself to me. He pulled down his trousers and bent over. I went to
work. I felt as though this were all happening to someone else; I heard
his glasses fall off and thought only this: soon I will be dead, so I
will never become old and sad like this man. A voice in my head said I
had finally started this process and would soon die. I felt such a
sense of release and of gratitude. It was not my intention to die
slowly of Aids; it was my intention to kill myself with HIV as my
excuse.
Over the next three months, I sought out other such experiences with
strangers whom I assumed to be infected, taking ever greater and more
direct risks. I went once a week, often on Wednesdays, to a spot where
I could have an economical experience that would infect me. My
situation was so different from the vegetative symptoms that had
constituted my break-down that it did not occur to me that I was still
in the grip of the same illness as before.
Then one day in early October, after one of my bouts of unpleasant
unsafe sex, this one with a boy who had followed me to a hotel and made
a beseeching move in the elevator, I realised that I might be infecting
others and that was not my agenda. I had wanted to kill myself, but not
the rest of the world. It was time to stop before I began to spread
disease everywhere. The knowledge that I would die had also lifted the
depression I'd felt. I became gentler again. I calculated how long I
would have to wait. I wrote a note to myself of the date in March when
six months would have elapsed from the last encounter, when I could get
my test, my confirmation. And all the while, I acted fine.
By the week of the HIV test, I was taking 12 to 16 milligrams of Xanax
every day, so that I could sleep all the time and not be anxious. On
Thursday of that week, I got up and checked my messages. The nurse from
my doctor's office said: 'Your cholesterol is down, your cardiogram is
normal and your HIV test turned out fine.' I called her immediately. It
was true. I was HIV-negative after all. As Gatsby said: 'I tried hard
to die but have an enchanted life.'
I knew then that I wanted to live and I was grateful for the news.
Things got steadily better after that. Late in the autumn, I suddenly
found that I was lying awake at night, my body trembling, much as it
had done at the lowest points of my depression, but I was awake this
time with happiness. Years had passed since I had felt happiness at all
and I had forgotten what it is like to want to live, to enjoy the day
you are in and to long for the next one, to know that you are one of
the lucky people for whom life is the living of it.
I felt safe from myself. I knew that eternal sadness, though very much
within me, did not mitigate the happiness. I turned 33 shortly
thereafter, and it was a truly happy birthday, at last.
I now have procedures in place for breakdowns. I know which doctors to
call and what to say. I know when it's time to put away the razor
blades and keep walking the dog. I call around friends and family and
say straight out that I'm depressed.
Here's what I know that has saved me: act fast; have a good doctor
prepared to hear from you; know your own patterns really clearly;
regulate sleep and eating, no matter how odious the task may be; lift
stresses at once; exercise; mobilise love.
Andrew Solomon on anti-depressants: do they really work?
I am often asked in social situations to describe my own experiences
with depression and I usually end by saying that I am on medication.
'Still?' people ask. 'But you seem fine!' To which I invariably reply
that I seem fine because I am fine, and that I am fine because of
medication. 'So how long do you expect to go on taking this stuff?'
people ask.
Then I say I will be on medication indefinitely. 'But it's really bad
to be on medicine that way,' they say. 'Surely now you are strong
enough to be able to phase out some of these drugs!' If you say to them
that this is like phasing the carburettor out of your car or the
buttresses out of Notre Dame, they laugh. 'So maybe you'll stay on a
really low dose?' they ask. You explain that the level of medication
you take was chosen because it normalises the systems that can go
haywire and that a low dose would be like removing half your
carburettor. You add that you have experienced almost no side effects,
and that there is no evidence of negative effects of long-term
medication. You say you really don't want to get sick again. But
wellness is still, in this area, associated not with achieving control
of your problem, but with discontinuation of medication: 'Well, I sure
hope you get off some time soon,' they say.
'I may not know the exact effects of long-term medication,' says John
Greden, chair of the department of psychiatry at the University of
Michigan. 'No one has yet taken Prozac for 80 years. But I certainly
know the effects of nonmedication, or of going on and off medication,
or of trying to reduce appropriate doses to inappropriate levels - and
those effects are brain damage. We would never treat diabetes or
hypertension in this on-again, off-again way; why do we do it with
depression?
Where has this weird social pressure come from? This illness has an 80
per cent relapse rate within a year without medication, and an 80 per
cent wellness rate with medication.' The side effects of these drugs
are for most people much healthier than the illness they address.
People who take Prozac should watch in the early stages for adverse
responses. The drug can cause facial tics and stiffening of muscles.
Anti-depressant drugs bring up questions around addiction. The lowered
libido, weird dreams, and other effects mentioned on the labelling can
be miserable. I accept that we cannot definitively know the very
long-term effect of the medications. It is most unfortunate, however,
that some scientists have chosen to capitalise on these adverse
reactions, spawning an industry of Prozac detractors who misrepresent
the drug as a grave peril foisted on an innocent public.
I deplore the cynics who keep suffering patients from the essentially
benign cures that might give them back their lives.
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